The last few days have been really hard.. I started thinking I was feeling better and have been trying to do some light activity, and I keep ending up shaking and nauseous, feeling completely defeated.
It is SO HARD to find information about hyperthyroidism and thyroidstorm COMBINED with postural orthostatic tachycardia syndrome /potssyndrome . How is it that more people haven't experienced both simultaneously? I've seen hypothyroidism, but not hyper. Being 6ft tall with two conditions simultaneously effecting my ability to do absolutely basic things like shower- which is so exhausting I'm sweating through my clean clothes afterwards. My ac in the house has been 68°, I'm only laying down most of the day, and I'm still drinking the most insane amount of fluids because I feel so dehydrated. I'm grateful to have a diagnosis, and I know once my thyroid levels come down I should be in a better place to control my pots syndrome diagnosis, which explains SO MUCH about my recent GI issues, and health quirks like blood pooling I've had for years or as long as I can remember, but blamed on my height. This waiting game that they told me could take 6-8 weeks from my hospitalization... I'm only on week 3. I've missed work ALL MONTH, and looking around I have nothing to show for it. I just want to clean my house, or make some art, or customize some clothes. The tremors in my hands are too bad to do anything laying down, and my hands only go numb trying. This is just a really hard week, and I know I am fortunate that once my thyroid stops freaking out I will be in a much easier spot to manage everything. It's nothing new to me feeling sick. But laying around like a blob is super frustrating. I need some good high waisted graduated compression leggings because I read that they can be really helpful. Any brand suggestions would be much appreciated, especially being as tall as I am. Much love to my people people's at work, I miss you tons💙 #potssyndrome #posturalorthostatictachycardiasyndrome #disautonomia #hyperthyroidism #thyroidproblems #medical #compressiontights #compressionsocks #recommendations #dysautonomiaawareness #potsie #spoonie